Saturday, 30 May 2020

A certain person is costing EVEN more money!

Those of you who regularly (at least over the last year or so) read this blog will be aware that last April was the start of fixing a certain person's (ACP's) issues with his eyes - some treatment was free, some we paid for.

Because we were so focused on ACP's eye issues last April in the weeks before we flew out to the UK, he didn't get his usual annual general health check.

That check generally includes a PSA blood test. Do you know what PSA stands for? Nor did we specifically. It is Prostate Specific Antigens. What is an antigen? - it's a toxin. What counts as normal in the PSA reading is anything up to 6.5, but the Ministry of Health's guidance for GPs states that no referral for investigative work should be made until the reading is above 10, unless there are other factors present. Other factors are generally found with a DRE - Digital Rectal Examination.

ACP's PSA reading had been increasing gradually up until 2018 but always the doctor's comment was N for normal. (We are interested to know why any reading for an antigen/toxin counts as normal, but more about that some other time.)

So, this year (with nothing to distract us apart from a global pandemic) ACP had his general medical check in April and asked for a DRE. And good thing he did, as apparently the prostate has grown and there was a nodule that the doctor could feel - nodules are not good! And the PSA test came back as 7.4. So that qualified him for a referral to a urologist for further investigations.

ACP and I had a discussion about the benefits of waiting to have the investigatory appointments done in the public system or paying to have them done significantly faster. While prostate cancer is slow moving, ACP does not like uncertainty and is in fact quite stressed by it. So it was easily agreed that we would go the private route, at least until the results were known and prognosis explained.

So our only outings during Level 4 and 3 lockdown were visits to clinics, one at Bowen Hospital for the MRI, and one to Wakefield Hospital for the biospy. We could do the required exchange of money on the internet ...

The diagnosis was that he has a stage 3 cancer of the prostate, and we agreed that of the two treatment options, the only one we were both comfortable with was surgical removal of the prostate. Neither of us was at all keen on him having 42 days of radiotherapy (apparently known coloquially as Spray and Pray ...), followed by a year of hormone treatment - our reluctance is so hard to fathom, don't you think? 

We also agreed that we were neither of us prepared to wait for surgery in the public system - in the main because elective surgery was on hold during Alert Levels 4 and 3 lockdown and the waiting list from pre-lockdown will necessarily be attended to first; and a stage 3 cancer is not as severe as a stage 4 or 5; and he would inevitably (and rightly) be moved down the list for more urgent cases.

So I am no longer retired! Not because we cannot afford this (we can), but because we need to make sure there are some cash reserves for if I get sick in the future. ACP I live with and love dearly has been informed he has used up his quota of our self funding insurance ...

The operation is scheduled for 11 June, and earlier this week he has been for a pre-op blood test and ECG. The day before the operation he has to take the godawful bowel prep to clean him out - so we won't be moving far from home then, will we?!

I am amazed, by the way, how phlegmatic and relaxed he is about the whole thing in the main, now that the uncertainty is over. As soon as he had the diagnosis he grew very calm. As I noted above, uncertainty does not become him.

We have told both our kids, and our families, and most of our friends. ACP has spoken with a few guys who have had prostate cancer with different therapies, and he has listened to an audiobook about saying goodbye to your prostate.

He is on a strict vegetables-only diet as instructed by our friend Lesley to inhibit the growth of cancer cells. It has worked for her so is definitely worth doing - it has been surprisingly easy to give up eating anything with a face!

ACP and I discussed whether I should write this post - we both believe that if it was fine for me to write about his eye issues then it is fine to write about this. And as we have let people know about it, we are finding how very prevalent prostate cancer is. So if this post encourages even just a few men to get into regular screening for PSA plus DRE once a year from the age of 35 (even if you have to pay for it) it is worth it to be more public.


Carol said...

Good decisions made Marylin and david. Fingers crossed that all goes well from June 11th onwards. Love and hugs from us both xx

Anonymous said...

Thanx for explaining about the PSA testing, useful info which I hadn't come across before.
Hope everything goes smoothly for you bothe now.
Love from Ann and Keith xx

Jennie said...

As Carol has said, a good decision. We will think of you both on 11th June and hope all goes well. xx

Marilyn, nb Waka Huia said...

Thank you, lovely people,
I will keep you posted.

Jo Murray (Jo B) said...

Prayers for you both and thinking of you xxx

Nev Wells said...

I’ll be sending my best wishes and positive thoughts to you both on the 11th. It’s good that you both feel able to discuss and educate on this issue. David is on the same path a relative of mine went on. He is all clear now but he admitted the operation and specifically the recovery period was much more than he was expecting. So it’s important to rest and take heed of the advice and rest more with a bit of exercise in there as well. You sound like you are in safe hands with your doctors which is a real positive.

Marilyn, nb Waka Huia said...

Thank you, Nev,
I am always mindful of the fact that surgeons underplay the after-effects of surgery - mainly because they've probably never been through it ... You know how they use the words: 'this will be a bit uncomfortable' which actually mean 'this will be very painful'... However all of our friends who have had the same consultant are very positive about him.

Surgery is tomorrow and David is still pretty upbeat - a bit anxious, but in good spirits.

Jo B, thank you darling.